Sunday, July 24, 2011

It’s Been a Busy Few Weeks….

Well so much for posting in a week...LOL Things have been busy...slow...frustrating...individually and together… Just a lot going on, and nothing really happening until about 2 weeks ago. Thus no post like I had said in my previous one.

Shortly after my last posting, I finally got in to see my Urologist… He seemed a little distant (just returning from a ‘family emergency’) and was not yet aware of what had been happening with me. After telling him everything, he figured I should start on Casodex (Bicalutamide) to see if the combination of that and the Eligard will bring things under control again for a while.  He also decided that it is time to see a medical oncologist to take over treatment… He sent the prescription over to the cancer centre pharmacy and a referral to the local medical oncologist… I went directly from his office over to the pharmacy to pick up the new meds…

The Casodex does pretty much the same thing as the Eligard, only in a different way… The side effects are pretty much the same...and the doctor warned me that they might be intensified being on both meds… Seems he was right about that… The ‘hot flashes’ have definitely intensified… they don’t seem to last as long, but WOW do I get HOT!..  and I’ve been a lot more tired since starting the Casodex, although I seem to be getting used to that, as it doesn’t feel as bad for the past few weeks as long as I don’t over do it. 

It was another week before I heard that I had an appointment with the medical oncologist… August 4th… set up by the radiation oncologist… then a few days later, I heard that I had an appointment with the medical oncologist...on August 2nd...set up by the urologist… I cancelled the Aug. 2nd one and kept the one on the 4th...reason being, Cindy had already arranged for the time off to attend with me… A week or so later I decided that I really didn’t want to wait that long, and really didn’t want to see the local guy… I went to my family physician and asked for a referral to a medical oncologist in Calgary at the Tom Baker Cancer Centre.  A few days later I heard from them… I had an appointment on July 13th...only a few days away. The 13th was also the day we were heading up to Edmonton for our eldest sons wedding… Travel plans were slightly revised, and onward we went.

We headed out early on Wednesday morning and managed to make it to the oncologist appointment on time… Filled out the questionnaire and waited for a short while before being taken in… Cindy and I met with the doctors assistant, and gave her my history and answered some questions… she explained a few things, then went to get the doc.  He came in, introduced himself and explained what he does… he briefly went over my history again, just to double check a few things, and then told us about 3 clinical trials he is involved in… he gave me some literature about two of them. He told us about new meds that are in the works, and what is currently being used as well.  We talked about a lot of things, then he set up another appointment for a week later so that we could make plans for the future… I was to read over the literature and decide whether I wanted to use the current treatments being used, or enter a clinical trial…

From there we headed to Edmonton...arriving a few days early to give me some time to relax and recharge before the wedding… Saturday arrived, and things went very well… it was a beautiful day and the Wedding was great… So proud of our son and his beautiful bride!  The rest of the day went well, but I didn’t get much of a chance to rest, so I was pretty tired by the time the reception was over… and even more tired by the time we made it to bed… It took a few days to recover, but all is well… We returned home on the following Wednesday.

On Thursday morning we headed back up to Calgary to see the oncologist again… We once again talked about the options available...I signed an application form for a clinical trial ( oral MDV3100 ).  Next I headed to the lab to have my PSA levels checked… if they are down, then I will cancel the application for the trial...if they are up, then I will stop the Casodex, and approximately six weeks later I will start the trial… There is a lot involved with it...lots of testing before, during and after...but the doctor has had some great results with it… the only major drawback is that it is a Double-Blind, Placebo-Controlled study… meaning I may not get the MDV3100… I guess only time will tell…

The other major thing that has been happening is that I have been working with the WCB and we are in the process of switching me from the insurance company over to WCB coverage… it’s going well, and they have been incredible… No problems at all...in fact, they are doing everything possible to make the process as easy as possible and offering all kinds of help… such a HUGE change from the insurance company!

PSA results this week some time… so I will let you know what is going on when I hear…

Until next time…

Posted by John on 07/24 at 07:59 AM
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