Thursday, August 09, 2012

Some Good News… Some Not So Good News… :(

It’s been a long time coming, but the time has come to get more bad news…

We went to see a medical oncologist in Calgary last week… After a LOT of prying, we got a few answers… which left us with more questions which won’t be answered until the end of August - my next visit with my oncologist.

The good news is that the bone scan, while it showed disease, didn’t show any major progression as in to size and number of tumors in the bone… the words were marginal progression… Also there didn’t seem to be any new spots showing up… The bad news is that the clinical trial that I was hoping for is closed… as in they were getting such good results that they are now applying for approval for use…

We asked about what is next in treatment… More bad news came… because the cancer is progressing slowly right now, there is NO treatment available...other than continuing on hormone deprivation and dealing with the pain in my hip and any future pains that start to show up… at least until the cancer is much more aggressive and spreading faster or the pain is no longer controlled with pain medication.  Chemo just doesn’t do any good at this stage… There is a clinical trial available… it’s in the second stage, but not sure I want to jump into that one… the side effects are a bit much to take on right now...but who knows… maybe I’ll brave it out since there really doesn’t seem to be any other options right now...and I can quit any time I want...and most of the side effects ‘should’ go away…

So, basically, there are medications out there that would probably help at this point...but they are either in the approval stage, or approved for use only after chemo which I can’t have until I’m sicker… Just seems VERY WRONG to me!! 

Oh well… I’ve managed almost 8 years of reasonably easy going, so now comes the tougher part… I’m ready!!  Bring it ON!!  The fight is getting tougher...but I’m up to it!

Until next time…

Posted by John on 08/09 at 09:39 AM
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