Monday, February 10, 2014

Update on Pelvic Events….

It’s been quite the ride over the past month and a half…

The last time I posted, I was hoping to be home for Christmas.  Well, thankfully, that happened.  It was a messed up discharge from the hospital, but I was discharged.  Because I was getting so many doctor referrals, no one really knew who was in charge of me.  I went to see the radiation oncologist and he was unable to offer any help.  I have had too much radiation already, so he refuses to do any more.  He therefore referred me back to an orthopaedic surgeon.  The surgeon was supposed to look over all my tests and let me know if he could offer any help.  I’m not sure what really happened, but the day he was supposed to show up, he ended up being called away just before he was to come and see me… the next day, the on call orthopaedic surgeon came in and basically said he hadn’t really looked at my x-rays or scans, but from the reports he briefly read, there is nothing that he would be able to do for me… An hour later, he discharged me.  I asked the nurse about pain meds and she said the surgeon said to just go back on what I was previously taking.  Cindy came up at lunch time to visit, and found out I was going home.  She was excited, as was I, but also wondering how we were going to make out… So, on Monday, December 23 I made my way home for Christmas.

As soon as I got home I called my family physician.  He was surprised and a little upset that I was home… Mostly because he was never told I was being discharged and he was the doctor in charge.  We talked about pain medication and he sent a prescription over to our pharmacy.

Monday night was pretty rough.  Every time I got up to move… whether to bed, to the couch, or the washroom, the pain would increase incredibly… then I would have to try to sit or lay as still as possible for the next 10 or 15 minutes until the pain would settle again… I was taking pain meds every 4 hours… I had alarms set to remind me when to take my pain meds...but I was usually ready for them before the alarm went off.... but I didn’t want to miss any, because it would take hours to get back on track.  Tuesday I spent most of the day in bed… I did get up for an hour or so and sat on the couch, but couldn’t stay comfortable… Christmas morning arrived and I got up and spent the morning on the couch.  Cindy and I opened gifts and had breakfast (thankfully I had made it a few weeks in advance and it was waiting for us in the freezer!)… I stayed reasonably comfortable as long as I stayed put… It still took 10-15 minutes to settle after moving from place to place… BUT I WAS HOME!!  We had a LOT of company Christmas Day as well… probably too much for me, as I got very uncomfortable and it took quite a while to get the pain to settle… I ended up taking extra pain meds to get the pain under control again.  Cindy was running around trying to take care of me, taking care of the meals and preparing for our sons to come home… We were both pretty exhausted by the end of the day!

The next week went well… the pain stayed controlled for the most part.  I was able to spend more time on the couch each day, but moving still made the pain flare up… Regardless, we had a fantastic Christmas with family and friends!!

New Years was quite unremarkable.  We had been invited to a house party, but I was in NO shape to be going out… So we spent a nice evening at home with our son and daughter-in-law… we did manage to stay up to toast the New Year in… but that was about it…

I had received a cane, walker and wheelchair from the WCB just before Christmast… to help with me getting around.  They come in very handy… I am able to get out for some fresh air with Cindy’s help.  We manage to get out for a tea… or to pick up a few groceries… I can’t spend a lot of time out...but it sure feels good to get out of the house from time to time!!

On January 2nd, I had a visit with one of our oncologists.  He asked about what the orthopaedic surgeon had said to me.  I told him that he hadn’t offered any help...and really didn’t even explain what was going on… The oncologist pulled up the CT scan and showed Cindy and I some of the damage that had occurred.  There are definite breaks in my pelvis… The oncologist asked us if there was any chance of radiation?  I explained what we had been told about already having too much radiation… He then asked if I would be interested in going to Calgary to see and orthopaedic surgeon who specialized in bone metastasis… He figures I am still young and strong enough to handle a more aggressive approach to treatment and we should not accept “nothing” as an option without looking at every possible option. 

A few weeks later we went to Calgary to see the specialist.  He isn’t positive he can help...but he isn’t positive he can’t help… He suggested that I have an injection of anesthetic and steroid directly into my socket joint...in hopes that it would bring some relief from the pain.  He is also going to look at my complete radiation history to see if there is any chance that my pelvis would stand up to surgery...as in a possible hip replacement…

I had the injection done on February 5th… It is quite the process… I didn’t get the almost instant relief that was expected… In fact, Wednesday night was quite bad… not so much pain, but discomfort and it seems i had an adrenaline rush… It took quite a while for me to settle down and get some sleep!  Since then, each day has been a little better.  There has been less pain… I am able to get around a little easier… Things seem to be better!  Hopefully that is a good sign… in any case, I am to go back to the specialist in 5-6 weeks…

So...It has been quite an interesting number of weeks… We are waiting to see if anything can be done… we are waiting to see how chemo is going to go… oh ya… I am still doing chemo… Treatment #5 this coming Friday… YUP Valentine’s Day Chemo… Oh Well… this will be the half way point…

Until next time....

Posted by John on 02/10 at 03:06 PM
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