Forgive My Absence…

WOW… It’s been a LONG time since I’ve posted… It seems that I just never get around to posting any more… I’ll try to catch up today.

Not much new going on since my last post… The effects of my last injection of Eligard should start to wear off in the next little while… The side effects of it will hopefully start to diminish in the next couple of months...sooner would be better, but that is not how it went last time, so I have no great expectations.  I will have my PSA levels checked in September, and a visit with the doc in late September to see how things are going and to set up a schedule for testing and visits.

I had a bone density scan, and had my vitamin D levels checked earlier this year… The bone scan showed no major changes since the last one a year and a half ago...that’s good news… My vit D levels are in the high normal range… My supplements must be at the right levels even though a doc or two thought I was over doing it… I will keep up the regimen I am following now…

I mentioned that I had done a “cancer research” questionnaire a while back.  Like I said then, there were some great questions… made me think a lot about how others react to the news about someone having cancer.  It has been my experience that it definitely changes how some people react around me… At first, it was just a shock...a lot of people didn’t seem to know what to say...either that, or they just didn’t want to say anything, because a lot of people seemed to avoid me… Don’t get me wrong...a LOT of people changed in the opposite way...people I didn’t have a lot to do with prior to my diagnosis became great friends and people who still keep in touch… But a lot of people I called friends before, have moved on and although I tried for a long time to stay in touch with them, I don’t hear from them any longer...unless I run into them.  Of course some of that is my fault...I don’t make the effort any longer either....part of that is because as time moved on, the things we used to share are now gone.  A number of my current friends are people I met or became more involved with after diagnosis.  At first it was hard to deal with… but friendships change over time...even when you are around people all the time.  Great friendships don’t go away...they change from time to time, but you always know your good friends are around and there for you… other friendships come and go...family and life in general seem to have a lot to do with that. 

For now, life goes on… I’ll wait for my next new “normal” to arrive… I’ll enjoy my friends and family… and hopefully get a chance to enjoy some summer weather...if it ever shows up… LOL

Until next time…

Posted by on 07/14 at 07:29 AM

Hey John,
Glad to see you back on.  I check every week.  I was wondering how you were.  I know what you mean about people and friends.
you can call me anytime.
cheers,
Jesse

Posted by  on  07/15  at  08:20 AM

Hey Jesse… Yeah, it’s been crazy busy...with what I can’t tell you...LOL

I keep telling myself that I will update regularly...but never seem to keep up with it…

My energy levels bounce around like crazy...every time the weather changes, my body reacts… usually not in a good way… but the sun is shining again today, so it’s a good day...Heck, every day is a GREAT DAY!! when you weren’t expected to be around for it!

John

Posted by  on  07/15  at  08:52 AM

Hi John,

Glad to hear that you are doing well, and are enjoying another HDT vacation. That’s great!

My husband got into a clinical trial at the Tom Baker for Aberitone Acetate (sp?) and is doing well too. His PSA has dropped dramatically.

I also wanted to let you know that I have found a great women’s support group for the spouses of PCa patients. If your wife would like to join, tell her to email me and I will send her the link. It really helps to be able to talk about this stuff with other women who understand.

Keep on keepin’ on!

Judy

Posted by  on  07/21  at  06:34 AM

Hi Judy…

Glad to hear your husband is doing well on the Abiraterone trial… It sounds like a promising next step treatment...by the sounds of things it works for about 70% of the men it’s been tried on… There are a few new treatments are being looked at and going into clinical trials...Finally some options that seem to help!

I’ll pass on the info to my wife… I know she could use some support from time to time...other than me… THANKS!

Posted by  on  07/21  at  06:54 AM
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