Sunday, May 15, 2016

Happy 10th Anniversary to me….

Today is the 10th Anniversary of my bicycle ride across Canada, “Cycle For Life”.  I figured this is a good time to update my blog (which I should have been doing, except for too much has been going on and I just never got to it… )

It is amazing that 10 years has passed since starting the ride.  So much has happened… So many changes in my life…and to my body.

The past 6 months or so have been tough.  I have been doing two different treatments, chemo with Cabazitaxel and radiation with Radium 223 or Xofigo.  I was lucky and had little in the way of side effects. In the beginning, I caught a bug which made me very sick.  It took a while to figure out that it was more of a flu bug than a reaction to chemo.  After that initial bout of sickness I had no problems at all. 

The combination of the two treatments seemed to be working in the beginning.  My PSA’s dropped significantly…but then they started to climb slowly again… We recently stopped the Cabazitaxel because it was no longer working.  Not only did my PSA’s go up, but a CTScan showed numerous new areas of disease.  The lymph nodes in my chest have enlarged and are pressing against my trachea and esophagus. This is causing some problems that I am slowly working around.  I also have a mass growing up against my left kidney… it has caused a problem with urine flow and I had to have a nephrostomy tube put in to help with that. I am feeling a lot better since having that done.  I also have a number of lymph nodes and soft tissue tutors growing in both the left and right sides of my pelvis.

We will probably continue with the Xofigo treatments. They seem to be working quite well.  I have had very little pain in my pelvic bones since starting the treatment.  The only thing that may be a problem is that I have to travel 5 hours to get to the treatment centre.  I have trouble sitting in an upright position for any length of time…and 5 hours is a long time for me!  So far I have managed quite well… hopefully that will continue as we move forward.

There is not much left in the way of treatments… There is a chemo that was used prior to the current chemo treatments.  It was not highly effective, and that is why it really isn’t used any more… but since I’ve used all the current treatments, my oncologist is offering it to me as a last resort.  Cindy and I still haven’t decided whether to go ahead with it or not… it’s a tough decision!

Well, that’s where we are medically…but today is an Anniversary!!  It is a day that I didn’t think I would make it to… but here I am… 10 years later celebrating the beginning of my ride.  The beginning of many new beginnings.  It was the beginning of new friendships and innumerable memories! 

Every day I think about the ride… sometimes it’s just a fleeting thought… other times I get lost in thought as I remember places I saw and people I met.  I love reading the diary I kept during the ride.  I love looking at the thousands of pictures that were taken.  I love talking to people about it… It helps me get through a lot of times when I would rather be elsewhere (like having the nephrostomy tube put in!!) LOL

So, on this 10th Anniversary of my ride, I want to thank all those people who supported the ride in any way… I am grateful to you all!  I want to thank my family, especially my wife, for being there with me.  Without all of you, my dream would never have become a reality…

Until next time….

Posted by John on 05/15 at 02:13 PM
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